Choosing an AAC system The comprehensive AAC assessment To determine the best AAC system for a child, it is necessary to conduct a comprehensive AAC assessment. This assessment needs to cover both characteristics of the child as well as the potential advantages and obstacles that exist in the environment. Ideally, it results in:
At the core of this assessment are four basic questions.
There is no strict order to these questions. In fact, each of them should be asked on a continual basis since, as the child grows and develops, the child’s needs and abilities, and the settings in which he or she functions will change. In addition, no single AAC device will necessarily be able to accomplish all of the child’s needs in all situations. An AAC system should, therefore, be multimodal, that is comprised of a number of different types of communication methods, each of which is used in different situations. (See Multimodal communication.) The assessment should be made up of information collected in a variety of ways. Included may be interviews with the persons who know the child best, observations of the child in natural settings, formal testing to obtain specific information or to fill in the gaps, and trial periods with actual AAC devices and systems to see how well they suit the child. It is important to make sure that the child is comfortable and not overtaxed during the assessment, otherwise the child may fall short of his or her true abilities. This means keeping assessment periods short, having parents or other familiar persons present and assisting, making everything as fun and interesting as possible, and honoring the child’s need to take breaks or end sessions (Mirenda & Iacono, 1990). OTHER RESOURCES:
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The child’s communication needs/goals Communication is functional, interactive and personal. A child’s communication needs are determined by what the child, family members, teachers, and other significant persons want the child to accomplish. Without communication, a child’s ability to have needs and wants met, to develop and enjoy social relationships, and to learn and share new information and ideas is extremely limited. (See What is AAC?) A child develops increasing self-confidence and control over his or her own life as the child improves his or her ability to communicate and interact socially. A child’s communication requirements, therefore, are directly related to the child's need for self-determination and, ultimately, self-satisfaction in participating in the interactions and events that make up his or her day (Light, 1989; Van Tatenhove, 1987). (See Learned helplessness.)
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Two approaches: Developmental and ecological There are two main approaches to identifying what a child’s communication needs and, therefore, goals are. One is to examine and work with the child from the viewpoint of normal speech/language development. This is called the developmental approach. It is based on the fact that typically-developing children go through series of stages. They go through these stages in fairly strict order, and do not progress to the next stage unless previous stages have been mastered. This is true in all areas of development, including motor, cognitive, emotional/behavioral, and speech/language. (See Normal speech and language development.) Communication intervention that is based on the developmental approach begins with an assessment that identifies at what stage (i.e. what ability or skill level) the child currently is. The goals of intervention,then, are to assist the child in reaching the next stage. The assessment and ensuing therapy are typically done by professionals, with input from family members and others who know the child well. The developmental approach is frequently used with infants and toddlers. (See Organizations supporting children under three.) However, while this approach often works well with infants and very young children, it tends to become less useful the older the child gets for the following reasons:
In early years, a child’s world consists primarily of family and home and, perhaps, early intervention center and therapists. However, when the child reaches school-age, that world expands to include school, teachers, peers and more of the community. Whereas, previously, life more or less centered around the child’s abilities and needs, school presents the new challenges and rewards of joining in activities and events designed to meet the needs of a whole group of children. Progress and success at this time depend on the child’s ability to fit into and be successful in the new school environment. In addition, the child may also be starting to visit friends’ homes and make forays out into the community. Psychologically, the child wants to establish greater independence, and peers are becoming increasingly meaningful. Consequently, at this age, the assessment of a child’s communication needs must also involve looking at his or her ability to function in these new-found activities and events, and identifying ways in which the quality of that participation could be improved through communication intervention.
The ecological model, thus termed because it examines the quality of the child’s functioning in relationship to the activities and environments in which he or she participates or is expected to participate, is an assessment approach that takes into account the child’s increasingly expanding world. With this method every child is examined on an individual basis in the context of his or her life and lifestyle. (See The ecological approach: Focusing on participation.) The ecological approach is more recent than the developmental approach, and incorporates many aspects of the latter into both its assessment and intervention methodologies. It recognizes that the child’s progress in developmentally-based skills does translate into more meaningful participation in activities and environments. Therefore, while, on a larger level, the ecological approach aims at improving the child’s functioning in activities and environments, it continues to embed specific developmental objectives into activity-based goals in order to achieve the quality-of-life outcomes being sought.
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The ecological approach: Focusing on participation Currently the ecological approach, which looks at the child’s functioning in relationship to the activities and environments in which he or she participates or is expected to participate, is considered by many to be the best method of assessing needs and identifying goals and instructional programs, particularly for school-age children with disabilities. It was originally developed by Brown, Branson-McLean, Baumgart, Vincent, Falvey and Schroeder who, in their landmark 1979 paper, described a procedure of systematically examining every environment, subenvironment and activity in which the child is involved, and looking at the meaningfulness of the child’s participation. They referred to this examination as an "ecological inventory." Rather than looking at the child’s abilities and disabilities in comparison to the norm, their model focuses on quality-of-life features such as the child’s independence, inclusion and self-satisfaction in his or her daily activities and routines. Ensuing goals and instruction, then, are aimed at increasing the overall quality and quantity of the child’s participation. The ecological approach is typically used to evaluate all domains of a child’s life, but can, of course, be used to look just at specific areas. Communication interventions, in particular, lend themselves very well to the ecological approach since communication is an interactive exchange with other people in the context of particular settings and activities. In examining a child’s communication needs in light of the ecological model, it is useful to keep in mind the basic purposes of communication:
The rationale behind the ecological approach is that a child needs to be more than a spectator or a passive participant in the activities and routines that make up his or her day. Communication taught for the purpose of improving the quality of a child’s participation will have more of an impact on his or her life than language or communication skills that are taught out of context. The basic principles of the ecological approach include the following:
There are many advantages in using the ecological approach for designing interventions for children with disabilities.
The collaboration and cooperation of the AAC team is especially important when using the ecological approach to assessment and instructional planning. (See The AAC team—the most important component.) Because goals and teaching programs are based on the child’s regular activities, no single person is capable of developing or carrying out interventions. The input of persons who know the child’s interests, typical environments and daily schedule are as important as that of the professionals who understand how to convert that information into goals and instructional programs.
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The ecological inventory Brown et al. (1979)’s ecological inventory starts by examining the typical environments and activities in which the child spends time, and then identifies the adaptations and instruction that are necessary to improve the child’s functioning within them. The ecological inventory is composed of the following steps (Westling & Fox, 1995):
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The McGill Action Planning System (MAPS) There are several other recommended assessment and planning strategies which use the ecological approach. Each of these methods examines the child in relationship to his or her whole life, and all place a high priority on the input of those persons closest to the child, in particular, family members. One is the McGill Action Planning System (MAPS) (Forest & Lusthaus (1990); ) Vandercook, York, & Forest, 1989)). This process centers around eight basic questions, and utilizes a facilitator to assist the team in reaching consensus. The eight questions are:
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Choosing Options and Accommodations for Children (COACH) Another evaluation method based on the ecological approach is Choosing Options and Accommodations for Children (COACH) developed by Giangreco, Cloninger and Iverson (1993). Using the COACH system, the team identifies "valued life outcomes" which are transformed into goals and implemented through instructional programs and adaptations. Goals are categorized either as high priority educational goals (i.e. IEP goals) based on what the family wants for the child, or "breadth of curriculum" goals which extend over additional areas where new skills are desirable. Emphasis is also placed on "general supports" which are adaptations made to the environment that promote a child’s ability to participate. The COACH system is intended to assist children who are already in school, but it can be adapted for use with younger children. OTHER RESOURCES:
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Personal futures planning Another assessment method based on ecological principles is called "personal futures planning" or "person-centered planning" (Mount& Zwernik, 1988). This strategy focuses on the strengths and capabilities of the child, keeping the child’s needs the central focus of planning, as opposed to any policies or systems already in place. It is comprised of three parts:
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The child's strengths and abilities Besides identifying needs, another function of the AAC assessment is to recognize the current strengths, abilities and preferences of the child, as well as those that seem most likely to develop or change as the child matures. Communicative ability is a highly individualized skill that can really only be evaluated and planned for on the basis of the child’s ability to participate meaningfully in his or her own personal activities and settings. (See The ecological approach: Focusing on participation.) There is, therefore, no universal communication assessment protocol, nor is there a single right way to conduct an assessment. The assessment is typically composed of some combination of interviews with family members, teachers and others who are close to the child, standard norm-referenced and non-standardized protocols, and trial-and-error skill testing both with and without aids and adaptations, including potential AAC systems. In fact, it is often recommended that the child try out potential AAC devices and systems during the assessment phase since this can provide very specific information on how well the child is able to utilize them. OTHER RESOURCES:
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General tips in assessing strengths and abilities
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External obstacles There are many reasons why a child may not be communicating or participating as well as could be in the activities and events of daily life. Characteristics of the child, the environment, or the persons with whom the child is involved may be at the root of a child’s lack of communication or passivity. Obviously, the child’s own communication impairment is one cause. Other reasons, however, are less apparent, like ignorance or negative attitudes on the part of partners towards individuals with disabilities, or the child’s own lack of self-confidence. It is important to identify these barriers and to address them.
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Access barriers and opportunity barriers In their book, Beukelman & Mirenda (1992) include detailed descriptions of the different types of obstacles to participation that exist for a child with severe communication impairments. Essentially, they describe two main types: "access barriers" and "opportunity barriers". Access barriers are those in which the inability to participate is due to problems inherent in the child, the environment, or in the AAC system itself. These are generally addressed by straightforward instruction, aids and adaptations. The following table gives some examples of access barriers to communication, as well as solutions.
Opportunity barriers are those in which the inability to participate is due to impediments imposed by the attitudes and fears of persons, or dsicriminatory organizations and policies that are external to the child and the environment. These are often more insidious and difficult to pinpoint, but no less inhibiting than access barriers. The following table gives some examples of opportunity barriers to communication, as well as solutions.
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Specific assessment questions: Communication These questions look at both how the child currently communicates and what the child’s communication needs are.
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Specific assessment questions: Cognitive abilities Understanding a child’s cognitive abilities helps to determine the level of complexity of the contents of the AAC system (i.e. vocabulary, choice of symbols and organization strategies).
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Assessing intentionality, and the understanding of means-end, causality and symbols Unintentional communication is the nonvoluntary or reflexive behaviors typical of infants that adults interpret and respond to as having communicative value. For example, when an infant cries, the parent may say "Oh, you are crying because you are hungry. Here is a bottle." Intentional communication occurs when a child behaves with the aim of influencing another person. Intentional communication covers a wide range of types of communication from non-symbolic, idiosyncratic behavior all the way to conventional, symbolic communication such as speech, sign language or a voice output communication aid (VOCA). (See Normal speech and language development.) Causality is the understanding of cause and effect. Means-end understanding is very similar to causality and is the realization that one action results in the occurrence of something else;, for example, giving an adult a wind-up toy will typically result in the adult activating it. These are important in teaching a child that pointing to a picture, making a manual sign or pressing a button on a VOCA produces an effect in another person (i.e. results in communication). The understanding of symbols is the awareness that one item can represent another. The child can then use objects, pictures and, eventually, printed words to represent actions and thoughts. This allows the child to refer to events and ideas that are not physically present, but are out of sight, in the past or future, or are abstract. It is very important to determine the extent to which a child understands intentionality, means-end, causality, and symbols. Many practitioners make the implicit assumption that the child understands these by attempting to teach an AAC system that utilizes these concepts (e.g. depends on pointing to pictures, or making signs). The instruction will be unsuccessful, and, frequently, the child, instead of the program, considered a failure. It is sometimes difficult to determine whether a behavior is intentional or not. Generally speaking, if the behavior would have just as easily occurred outside of the presence of another person, then it is probably unintentional. (However, several researchers point out that some children who produce a communicative behavior even if no one is around, may still be considered intentional communicators. Paradoxically, these are typically children undergoing aggressive communication programs. In the attempt to teach them that their communication does have an effect on other persons, they never experience an unanswered communicative attempt. They never learn the necessity of obtaining the partner's attention prior to communicating because an adult is always there to respond (Reichle, York, & Sigafoos, 1991). A child probably comprehends the concepts of means-end and causality if the child appears to understand how switch toys operate, demonstrates looking at or giving objects to an adult for the purpose of receiving assistance, or constantly tries to gain the attention of adults in a deliberate manner. If these actions are not present, then the child’s initial AAC program should not consist of switches or other indirect means of signaling. It also means that symbols should not be used, and that the child should be touching, pointing, reaching for or gazing directly at the object in reference. Generally, a child understands symbols if he or she anticipates an activity by the appearance of one of the objects used in that activity, indicates an awareness of the meaning of frequently appearing symbols such as the CocaCola logo, or is interested in television or books. In contrast, a child is probably at a pre-symbolic level if he or she does not use objects as they were intended, but instead mouths, grabs or throws them (Mirenda & Schuler, 1988).
If the child is unable to even match objects to objects, then symbols should not be initially used in the AAC program. The child should be taught communication techniques, such as pointing, gazing or gesturing, that refer directly to the object in reference. At the same time, though, the program should begin using communicative techniques that advance the child’s cognitive understanding. This dual approach allows the child to be immediately successful in communicating, which increases the motivation to learn, while simultaneously progressing towards a more sophisticated and powerful method of communicating (Van Tatenhove, 1987).
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Specific assessment questions: Motor abilities This determines how the child will access his or her AAC.
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Specific assessment questions: Sensory functioning
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Specific assessment questions: Behavioral issues
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Specific assessment questions: Current and potential obstacles
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Specific assessment questions: Aids and adaptations
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